For most people, I don’t think Down syndrome is something you think about until it’s up close and personal to you. That was the case for me until Skyla came into my life through someone I call my sister, Zugey Jones, a close cousin that I grew up with.

She gave birth to Skyla about 4 years ago and last year we did an interview that I’m finally posting to share a bit about what it’s like to have a child with Down syndrome, what everyone needs to know about interacting with someone with Down syndrome, and how you can get involved this October during Down syndrome awareness month.

Here are 3 things I learned during the interview:

  1. Yes, there’s a spectrum with Down syndrome, but it’s not perfect and it really doesn’t matter or tell you anything about a specific person. Each person (regardless of a diagnosis) is unique and their abilities, the way of learn, and their speed of learning will be different. Just get to know people.
  2. Someone with Down syndrome has different sensory facilities, so that means sometimes they can get hurt without knowing or might hurt you without intending to.
  3. Someone with Down syndrome is like everyone else except possibly more fun, so say hi, include them, and be ready for a good time.

We also talk about how she manages the constant doctor visits and maintain a strong mental game. For the full interview, go here:

Special: Down syndrome Awareness Month with Zugey Jones

To participate in a buddy walk near you visit

P.S. I know this isn’t the typical content for my blog, but it’s important to me and I think everyone can benefit from learning more about this.

Much love,


(Chicago, IL) The last 12 months have consisted of not only raising one puppy, but two! I’ve learned so much about myself and them through this process, and I’m grateful for moments like these when we all feel free.

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